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1.0 Purpose

  • A. This policy is created to demonstrate AAPA’s commitment to privacy and protection of personal information that we collect and process.

2.0 Application

  • A. This policy applies to any information collected in the process of doing business including but not limited to:a. Website (including it integrated third party platforms).b. Platforms we use to facilitate management of the services provided (e.g. conference registration sites)c. Email, test, other electronic messages, telephone, or other communication between members.

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3.0 Policy

  • A. Use of AAPA collection places signifies acknowledgement and understanding of the terms of this policy. Collection places collect personal information to facilitate your access, purchase, use and/or participation in AAPA offerings. This may include but is not limited to:

    • ​Name

    • ​Telephone Number
    • Email address

    • Professional title

    • Business address

    • Business details

  • B. Services provided by AAPA may require certain information such as but not limited to:

    • ​Membership

    • Conferences & events

    • Educational programs

    • Online forums

    • Career services

    • Surveys

    • Other services related to member benefits.

  • C. Personal information may be collected when:

    • a. A request is made to contact you via mail, email, or telephone for promotions, updates, or information about AAPA services.

  • D. Information collected may be non-identifiable such as aggregate non-personal information that cannot be used to identify the individual.

  • E. Choosing not to provide your personal information may restrict certain components of theAAPA services.

4.0 Personal Information Collected Automatically

  • A. Tools may be used to collect information about you, your computer access points, and the web browser utilized to connect to the AAPA website.

  • B. AAPA may use cookies to personalize interactions with the website. It is not mandatory to accept cookies, you may set your browser to restrict their use, and you may delete them after they have been placed on your hard drive. If you do not accept or delete our cookies, some areas of the website may take more time to work or may not function properly.

  • C. Cookies may be served, if individuals have provided consent, having been given clear and comprehensive information, about the purposes for which personal data will be processed.Effective consent may be provided by using browser settings if this positive action has been taken.

  • D. Additional information may also be collected from your web browser at each visit the web site.Information collected may include the pages visited and the time spent on each web page or area of the web site, and areas visited. This information may include your Internet Protocol(“IP”) address, the type of browser, the time used to access our website and the referring websites address. Google Analytics may also be used.

  • E. Our service providers may also use other standard web-based technologies to analyze movement while accessing the website. Technologies include web “beacons”, “pixel tags”, and“clear gifts”. These technologies help ascertain the effectiveness of our product, service, and marketing to help determine the best use for website content and service.

4.0 Use of Your Personal Information

  • A. AAPA may use your personal information to:

    • a. Provide information about services and affiliate partnerships.

    • b. Fulfill member benefits.

    • c. Facilitate attendance/participation at AAPA conferences and events (both in person and virtual).

    • d. Track attendance at meetings and events.

    • e. Prepare invoices and process payments.

    • f. Respond to questions or requests or other communication sent to AAPA.

    • g. Carry out obligation and enforce rights arising from contract entered between you andAAPA.

    • h. Fulfill other purposes for which information is provided to AAPA.

    • i. Present AAPA website effectively to members and the public.

    • j. Perform other legitimate purpose reasonably consistent with membership or affiliated partnership.

5.0 Disclosure of Your Personal Information to Third Parties

  • A. AAPA may share your personal information with the following categories of recipients:

    • a. Third party service providers (“Service Providers”) who provide (without limitation)administrative/operational services; data processing; membership services; marketing &communication services; meeting management services; website hosting services; membership database services; credit card processing; conference registration; conference mobile applications; conference/event hotels and venues; or who otherwise process personal information for purposes that are described in this privacy policy or notified to you when we collect your personal information;

    • b. Other AAPA members may receive certain items of your personal information as part of a membership directory or through collaboration portals. In addition, if you sign up to attend a member meeting or other AAPA-sponsored event, all other AAPA members who sign up for the event will be notified of your intended attendance at the event and may be given your full name, address, company name, and email address. We are not responsible for other members use or misuse of your personal information; and

    • c. Affiliated partners, such as exhibitors, sponsors, and advertisers, may receive membership lists or event attendance lists that include your full name, address, company name, and email address. We are similarly not responsible for the use or misuse of your personal information by our affiliated partners.

  • B. We may also disclose your personal information as is necessary to: (a) comply with a subpoena or court order; (b) cooperate with law enforcement or other government agencies; (c) establish or exercise our legal rights; (d) protect the property or safety of our company and employees, contractors, vendors, suppliers, and customers; (e) defend against legal claims; (f) help with internal and external investigations; or (g) as otherwise required by law or permitted by law. We may disclose your information in connection with the sale or merger of AAPA or any transaction that involves the sale or assignment of some or all of our assets.


6.0 Information Collected Automatically

  • A. Use of Cookies, Web Beacons, Links, And Other Tracking Technologies.

    • a. AAPA may keep track of how you use and interact with the Services using cookies, web beacons, links, and other tracking technologies. We do this to help analyze the use of and improve the Services. Through these technologies we may automatically collect information about your use of the Services and other online activities, including our email correspondences, third-party services, and client applications, and certain online activities after you leave the Services. Link information is generally only analyzed on an aggregate basis. Some Services may not function properly if you disable cookies. Such data may include analytics information, sites visited before visiting the Services, browser type, operating system, and tracking of your interactions with our content and emails.

  • B. Unique Identifiers

    • a. When using or accessing the Services, we may access, collect, monitor, store on your device, and/or remotely store one or more "Unique Identifiers," such as a universally unique identifier (“UUID”). A Unique Identifier may remain on your device persistently, to help you log in faster and enhance your navigation through the Services. Some features of the Services may not function properly if use or availability of UniqueIdentifiers is impaired or disabled.

  • C. Log File Information

    • a. When you use our Services, we may receive log file information such as your IP address, browser type, access times, domain names operating system, the referring webpage(s), pages visited, location, your mobile carrier, device information (including device and application IDs), search terms, and cookie information. We receive log file data when you interact with our Services, for example, when you visit our websites, sign into our Services, or interact with our email notifications.

    • b. AAPA uses log file data to provide, understand, and improve our Services, and to customize the content we show you. AAPA may link this log file to other informationAAPA collects about you via the Services.

  • D. Public Information

    • a. Information you make publicly available in any public or open forum, such as on a social network, may be considered public information for the purposes of this Privacy Policy, and may be accessed and collected by AAPA. Please be aware that any content or AAPA may also collect information about you from publicly available sources. information you share with or provide to third parties using or related to your use of the Services is neither private, nor confidential. AAPA is not responsible for any content or information you post or share with third parties. If you do not wish for certain information to be public, please do not share it.

7.0 Data Storage and Security

  • A. Reasonable efforts are made to ensure that our Service Providers have implemented physical, electronic, and procedural security measures to assist with safeguarding your personal information, and to help protect against unauthorized access and disclosure. Not withstanding our efforts, the Internet has inherent security risks. We cannot promise, and you should not expect, that your personal information, personal searches, and other communications will always remain secure. You should take care about how you handle and disclose your personal information or any username or password that you are required to use to access all ourCollection Places.

  • B. Your personal information will not be kept longer than necessary for the purpose for which it was collected. We will securely destroy or erase personal information from our systems when it is no longer required to accomplish the purpose for which it was collected. We also will endeavor to ensure the deletion and destruction of personal information stored and maintained by third parties. We may, however, retain some personal information to comply with applicable laws, regulations, rules, and court orders.

8.0 Children and Data Collection

  • A. The AAPA Website content is not directed toward children. We do not knowingly collect personal information from children. If we or our Service Providers become aware that a child has provided us with personal information without parental consent, that information will be deleted from our databases. If you have questions about personal information that may have been submitted by a child, please email us at

9.0 How You May Access and Change the Information that AAPA Collects

  • A. The first time you provide registration information through our website, you may be offered the opportunity to subscribe to and receive additional information about our products and services. You may opt-out of continuing to receive messages. We may take up to 10 business days to process the opt-out request. In some instances, we may have already shared your information with one of our authorized third parties before you changed your information preferences, and you may briefly continue to receive e-mail even after you have opted out. FTCe-mail compliance guidance allows us to send you transactional and relationship e-mail without offering you the opportunity to opt-out of receiving those types of email.

  • B. By providing us with your personal information, you are consenting to our use of it in accordance with our privacy policy, including the transfer of your personal information across international boundaries to jurisdictions anywhere in the world as permitted by local law, including, without limitation the United States.

10.0 Rooms/Forums/Message Boards/News Groups

  • A. AAPA website may make digital forums available to its users. Please remember that any information disclosed in these areas becomes public information, and you should exercise caution when deciding to disclose information through these areas of the website.

11.0 Information Sharing

  • A. AAPA Personnel

    • a. AAPA personnel may have access to your information as needed to provide and operate the services in the normal course of business. This includes information regarding your use and interaction with the services.

  • B. Service Providers

    • ​a. AAPA works with various organizations and individuals to help provide the Services to you ("Service Providers"), such as website and data hosting companies and companies providing analytics information, like Google Analytics. We may share your personal information with our Service Providers for the purpose of providing the Services. The information we share to our Service Providers may include both information you provide to us and information we collect about you, including Personal Data and information from data collection tools like cookies, web beacons, log files, UniqueIdentifiers, and location data. AAPA takes reasonable steps to ensure that our ServiceProviders are obligated to reasonably protect your information on AAPA’s behalf. IfAAPA becomes aware that a Service Provider is using or disclosing information improperly, we will take commercially reasonable steps to end or correct such improper use or disclosure.

  • C. Business Transactions

    • a. AAPA may purchase other businesses or their assets, sell our business assets, or be involved in a bankruptcy, merger, acquisition, reorganization, or sale of assets (a“Business Transaction”). Your information, including Personal Data, may be among assets sold or transferred as part of a Business Transaction.

  • D. Lawful Requests

    • a. AAPA may be required to disclose user information pursuant to lawful requests, such as subpoenas or court orders, or in compliance with applicable laws. We generally do not disclose User information unless we have a good faith belief that an information request by law enforcement or private litigants meets applicable legal standards. We may share your information when we believe it is necessary to comply with applicable laws, to protect our interests or property, to prevent fraud or other illegal activity perpetrated through the Services or using the AAPA name, or to protect the safety of any person. This may include sharing information with other companies, lawyers, agents, or government agencies. Nothing in this Privacy Policy is intended to limit any legal defenses or objections that you may have to a third party’s, including a government’s, request to disclose your information.

12.0 Your Rights and Choices Regarding Your Information

  • A. Relevant data protection laws provide you certain rights regarding the protection of your data, including the right to:

    • a. Access

    • b. Rectification.

    • c. Erasure

    • d. Restrict processing

    • e. Object to processing

    • f. Data portability

    • g. Complaint to a supervisory authority

    • h. Withdraw consent

  • B. Access to the Information AAPA has collected about you:

    • a. AAPA provides certain tools and settings within the Services to help you access, correct, delete, or modify your personal information associated with the Services.

    • b. AAPA welcomes you to contact us regarding the information we have collected about
      you, including regarding the nature and accuracy of the data that has been collected about you, to request an update, modification, or deletion of your information, to opt-out of certain Services uses of your information, or to withdraw any consent you may have granted to AAPA.

  • C. Please note requests to delete or remove your information do not necessarily ensure complete or comprehensive removal of the content or information posted and removed information may persist in backup copies indefinitely. Please note that if you choose to delete your information or opt-out of the collection and use of your information, you understand that certain features, including but not limited to access to the Services, may no longer be available to you.

  • D. We may store the information we collect about you indefinitely, but information generally will be retained only for as long as necessary to fulfill the purposes for which the information was collected, or as otherwise required by law.

  • E. Following termination or deactivation of an AAPA account, AAPA may retain your information and content for a commercially reasonable time for backup, archival, and audit purposes.

  • F. Opting Out of Communications From AAPA

    • a. Users may opt-out of receiving certain communications from AAPA by contacting us using the contact information provided. However, please note you may not opt-out ofServices-related communications, such as account verification, changes, or updates to features of the Services, or technical and security notices.

  • G. Do Not Track

    • a. AAPA does not currently employ a process for automatically responding to “Do NotTrack” (DNT) signals sent by web browsers, mobile devices, or other mechanisms. Per industry standards, third parties may be able to collect information, including PersonalData, about your online activities over time and across different websites or online services when you use Services. You may limit certain tracking by disabling cookies in your web browser. You may opt out of online behavioral ads at

  • H. Security of Your Information

    • a. AAPA takes reasonable efforts to secure and protect the privacy, accuracy, and reliability of your information and to protect it from loss, misuse, unauthorized access, disclosure, alteration, and destruction.

    • b. AAPA implements security measures as we deem appropriate and consistent with industry standards. As no data security protocol is impenetrable, AAPA cannot guarantee the security of our systems or databases, nor can we guarantee that personal information we collect about you will not be breached, intercepted, destroyed, accessed, or otherwise disclosed without authorization. Accordingly, any information you transfer to or from Services is provided at your own risk.

    • c. Please do your part to help us keep your information secure.

    • d. You are responsible for maintaining the confidentiality of your password and AAPA account and are fully responsible for all activities that occur under your password orAAPA account.

    • e. AAPA specifically reserves the right to terminate your access to the Services and any contract you have with AAPA related to the Services in the event it learns or suspects you have disclosed your AAPA account or password information to an unauthorized third party.

  • I. Transfer and Storage of Your Information

    • a. Information AAPA collects about you may be transferred, processed and/or accessed by us in the United States, or another country where we, or our Service Providers operate.

    • b. Personal Data may be transferred to, and maintained on, computers located outside of your state or country where privacy laws may differ from and may not be as protective as those where you live. If you are located outside the United States and choose to allow us to collect information about you, please be aware that AAPA may transfer your Personal Data to the United States and process and store it there.

  • J. Website Hosting

    • a. AAPA works with Wix as its web hosting services provider. Wix is located at 500 Terry Francois Boulevard, 6th Floor, San Francisco, CA, 94158

    • b. AAPA shares your data, including personal data with Wix hosting service provider for the purposes of processing your data pursuant to your use of the services

  • K. Data Hosting

    • a. AAPA works with Wix as its data hosting services provider. Wix is located at 500 Terry Francois Boulevard, 6th Floor, San Francisco, CA, 94158

    • b. AAPA’s data is stored by Wix and shares your data, including personal data, with our website hosting service provider for the purposes of processing your data pursuant to your use of the services.


  • L. Safely Using AAPA Services

    • a. Despite AAPA’s safety and privacy controls, we cannot guarantee the Services are entirely free of illegal, offensive, pornographic, or otherwise inappropriate material, or that you will not encounter inappropriate or illegal conduct from other Users when using the Services. You can help AAPA by notifying us of any unwelcome contact by contacting us using the information below.

  • M. Changes to AAPA’s Privacy Policy

    • a. AAPA may modify this Privacy Policy from time to time. The most current version of this Privacy Policy will govern our use of your information and will be located at

    • b. You may contact us to obtain prior versions. We will notify you of material changes to this policy by posting a notice at the Services or by emailing you at an email address associated with your AAPA account, if applicable, and provide an “at a glance”overview of any changes.

Contact AAPA
Bylaws Committee Liaison
Arizona Association of Patient Advocates

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